Rett Syndrome Research Trust Benefit Gala

Event Details

Rett Syndrome Research Trust Benefit Gala

Time: October 20, 2016 from 7pm to 11pm
Location: SLS Hotel
Street: 465 S. La Cienega Blvd.
City/Town: Los Angeles, CA
Website or Map:…
Phone: 310-709-1101
Event Type: fundraiser
Organized By: Amy Prenner
Latest Activity: Sep 11, 2016

Export to Outlook or iCal (.ics)

Event Description

A national charity is hosting an annual gala that benefits the Rett Syndrome Research Trust. It has become a premiere event in the Los Angeles area.  Now in its 8th year, the event will take place on Thursday, October 20, 2016, at the SLS Hotel in Beverly Hills.  This year’s gala is co-chaired by three families—Stephanie & Andy Bohn, Heidi & Jonathan Epstein, and Marci & Rudy Valner—that have daughters that struggle with Rett Syndrome.  The event’s name has changed to Reverse Rett LA to reflect the growing awareness of Rett, the fact that the disorder has been reversed in mouse models, and the increasing number of families involved.

The event will feature cocktails, hors d’oeuvres, an auction and more.  Sponsorship opportunities are available in various levels and include tickets to this special evening.

About Rett Syndrome: 

A devastating neurological disorder that affects primarily girls and women.

More than 350,000 afflicted around the world, including 16,000 in the U.S. 

Children with Rett develop normally in the first year or two of life; then they regress, with most losing the ability to speak and walk and developing a host of other painful symptoms. 

The prevalence of Rett equals that of Cystic Fibrosis, Huntington’s, and ALS, but research is vastly underfunded in comparison to those diseases. The cause of Rett Syndrome is known—a random mutation on a single gene—setting it apart from other neurological disorders and giving researchers a target.

Rett has been proven to be reversible in animal models, and research is now focusing on translating that achievement to girls and women with the disease. 

Comment Wall


RSVP for Rett Syndrome Research Trust Benefit Gala to add comments!

Join Culver City Times

Attending (1)

The Culver City Times is the news and social network for Culver City.  Stay informed.  Join now!

      • Got news you think everyone should know? Blog it.

• Have a show or attending a benefit? Put it on the calendar.
• Got video of the big game? Embed it.
• Photos of your business or the school play? Upload them.

For daily updates

Enter your email address:

Delivered by FeedBurner

Latest Activity

DojO- posted an event

Pierre CHAMBERS Looking Back: "Songs of My Childhood" at The Gardenia Resturant & Lounge

December 13, 2019 from 9pm to 11pm
23 hours ago
Lucy Pollak posted an event

60th Annual L.A. County Holiday Celebration at Dorothy Chandler Pavilion

December 24, 2019 from 3pm to 6pm
Dianne Porchia posted an event

Road Map to Holistic Healing with Dianne Porchia at Cornell Winery

January 10, 2020 from 6pm to 9pm
Dianne Porchia is now a member of Culver City Times
Donald Shapiro posted a photo
Sharon Benson posted a video


Provided to YouTube by CDBaby Christmas · Soul Dogs Christmas ℗ 2019 Sharon Benson Released on: 2019-11-11 Auto-generated by YouTube.
Nov 29
Donald Shapiro posted photos
Nov 27
Culver City Film Festival posted a blog post
Nov 24

Play "Where Am I in Culver City?"

Not a member? Sign up here to leave your answer.

Good luck!

To see the answer, click here.

© 2019   Created by Culver City Times.   Powered by

Badges  |  Report an Issue  |  Terms of Service